by Francis Phillips
A father’s struggle to understand the point of his daughter’s short, totally dependent life.
Kent Gilges’ oldest daughter, Elizabeth, was born in 1993. She seemed to be progressing well, but then developed a tumour on the brain. At eight months she underwent major surgery to remove it. During this process she suffered a stroke; from then until her death in 2004, she was never able to walk, talk, feed herself or even smile. In this poignant memoir her father pays tribute to a “tiny, insignificant, monumental life”.